The panorama for children with heart disease in Colombia
Keywords:
Cardiovascular Diagnostic Techniques, Congenital Heart Disease, Massive Screening, Pediatric Health
Abstract
Notwithstanding the availability of human and technological resources, the care deficit in the diagnosis and treatment of patients with congenital heart diseases in Colombia is estimated at 50%. Barriers to healthcare delivery and access, both at the basic and specialized level, means that patients progress and reach advanced stages of the disease, with a direct impact on morbidity and mortality, and on the cost of care. Problems in early detection and diagnosis, poor access to specialized institutions, administrative constraints to authorize surgeries, diagnostic tests, and medical services, in addition to the lack of government recognition of national referral centers for the specialized management of these patients, compromise both the quality-of-life and the survival of patients. The purpose of this study is to highlight the current situation of patients and outline the diagnostic impact of the tools widely available in our environment for the detection of these pathologies.
References
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9. Hoffman J. The global burden of congenital heart disease. Cardiovasc J Afr 2013;24:141-145.
10. Baltaxe E, Zarante I. Prevalence of congenital heart disease in 44,985 newborns in Colombia. Arch Cardiol Mex 2006;76:263-268.
11. EUROCAT. European surveillance of congenital anomalies. 2015; [Cited 2019 Feb 18. Available at: http://www.eurocat-network.eu/accessprevalencedata/.
12. Reller MD, Strickland MJ, Riehle-Colarusso T, et al. Prevalence of congenital heart defects in metropolitan Atlanta, 1998-2005. J Pediatr 2008;153:807-813.
13. Mocumbi AO, Lameira E, Yaksh A, et al. Challenges on the management of congenital heart disease in developing countries. Int J Cardiol 2011;148:285-288.
14. Van der Linde D, Konings EE, Slager MA, et al. Birth prevalence of congenital heart disease worldwide: a systematic review and meta-analysis. J Am Coll Cardiol 2011;58:2241-2247.
15. García A, Caicedo M, Moreno K, et al. Regional differences in congenital heart disease. Rev Col Cardiología 2017;24:161-168.
16. Sandoval N, Kreutzer C, Jatene M, et al. Pediatric cardiovascular surgery in South America: current status and regional differences. World J Pediatr Congenit Heart Surg 2010;1:321-327.
17. The Society of Thoracic Surgeons Congenital Heart Surgery Data Summary. STS congenital heart surgery data summary all patients [Internet. [Citado 2019 Feb 8. Available at: https://www.sts.org/sites/default/files/documents/Congenital-STSExecSummary_AllPatients_Spring2018.pdf.
18. Vélez J, Sandoval N, Cadavid E, et al. Cooperative study of operatory mortality in the correction of congenital cardiopaties in Colombia. Rev Colomb Cardiol 2005;11:397.
19. Kemper AR, Mahle WT, Martin GR, et al. Strategies for implementing screening for critical congenital heart disease. Pediatrics 2011;128:e1259-e1267.
20. Yang Q, Chen H, Correa A, et al. Racial differences in infant mortality attributable to birth defects in the United States, 19892002. Birth Defects Res A Clin Mol Teratol 2006;76:706-713.
21. Rubio MA, Dennis R, Domínguez MT, et al. Challenges to the improvement of Colombian medical brigades aimed at the diagnosis of congenital heart disease: a qualitative approach. Glob Public Health 2019;14:1193-1203.
22. Mellander M, Sunnegardh J. Failure to diagnose critical heart malformations in newborns before discharge-an increasing problem? Acta Paediatr 2006;95:407-413.
23. Brown KL, Ridout DA, Hoskote A, et al. Delayed diagnosis of congenital heart disease worsens preoperative condition and outcome of surgery in neonates. Heart 2006;92:1298-1302.
24. Peyvandi S, De Santiago V, Chakkarapani E, et al. Association of prenatal diagnosis of critical congenital heart disease with postnatal brain development and the risk of brain injury. JAMA Pediatr 2016;170:e154450.
25. Allan LD. Rationale for and current status of prenatal cardiac intervention. Early Hum Dev 2012;88:287-290.
26. Knowles R, Griebsch I, Dezateux C, et al. Newborn screening for congenital heart defects: a systematic review and cost-effectiveness analysis. Health Technol Assess 2005;9:1-152.
27. Suárez-Ayala DV, Morcillo-Bastidas KL, Vallejo-Mondragón EL, et al. Knowledge and implementation of the neonatal screening for critical congenital heart diseases with a pulse oximetry. Rev Colomb Cardiol 2016;23:553-559.
28. Mahle WT, Newburger JW, Matherne GP, et al. Role of pulse oximetry in examining newborns for congenital heart disease: a scientific statement from the American Heart Association and American Academy of Pediatrics. Circulation 2009;120:447-458.
29. Engel MS, Kochilas LK. Pulse oximetry screening: a review of diagnosing critical congenital heart disease in newborns. Med Devices (Auckl) 2016;9:199-203.
30. Ryan DJ, Mikula EB, Germana S, et al. Screening for critical congenital heart disease in newborns using pulse oximetry: evaluation of nurses knowledge and adherence. Adv Neonatal Care 2014;14:119-128.
31. Pérez-Lescure Picarzo J, Rueda Nuñez F, Centeno Malfaz F, et al. Comments by the Spanish Society for Paediatric Cardiology and Congenital Heart diseases on the recommendations by the Spanish Neonatology Society as regards screening for critical congenital heart diseases in the neonatal period. An Pediatr 2018;89:70-71.
32. Ministerio de Salud y Protección Social-Colciencias. Guía de práctica clínica. Detección de anomalías congénitas en el recién nacido. Minsalud Bogotá, Colombia; 2013 (Guía No. 03).
2. Bernal J, Zarante I. Malformations and congenital anomalies: impact and future. Biomedica 2009;29:7-8.
3. Mozaffarian D, Benjamin EJ, Go AS, et al. Writing Group MembersExecutive summary: heart disease and stroke statistics-2016 update: a report from the American Heart Association. Circulation 2016;133:447-454.
4. Lozano R, Naghavi M, Foreman K, et al. Global and regional mortality from 235 causes of death for 20 age groups in 1990 and 2010: a systematic analysis for the Global Burden of Disease Study 2010. Lancet 2012;380:2095-2128.
5. Donofrio MT, Moon-Grady AJ, Hornberger LK, et al. Diagnosis and treatment of fetal cardiac disease: a scientific statement from the American Heart Association. Circulation 2014;129:2183-2242.
6. Andropoulos D. Anesthesia for congenital heart disease. 3rd ed. Andropoulos D, editor. Hoboken, New Jersey: John Wiley & Sons, Inc.; 2015.
7. Murni IK, Djer MM, Yanuarso PB, et al. Outcome of pediatric cardiac surgery and predictors of major complication in a developing country. Ann Pediatr Cardiol 2019;12:38-44.
8. Rao SG. Pediatric cardiac surgery in developing countries. Pediatr Cardiol 2007;28:144-148.
9. Hoffman J. The global burden of congenital heart disease. Cardiovasc J Afr 2013;24:141-145.
10. Baltaxe E, Zarante I. Prevalence of congenital heart disease in 44,985 newborns in Colombia. Arch Cardiol Mex 2006;76:263-268.
11. EUROCAT. European surveillance of congenital anomalies. 2015; [Cited 2019 Feb 18. Available at: http://www.eurocat-network.eu/accessprevalencedata/.
12. Reller MD, Strickland MJ, Riehle-Colarusso T, et al. Prevalence of congenital heart defects in metropolitan Atlanta, 1998-2005. J Pediatr 2008;153:807-813.
13. Mocumbi AO, Lameira E, Yaksh A, et al. Challenges on the management of congenital heart disease in developing countries. Int J Cardiol 2011;148:285-288.
14. Van der Linde D, Konings EE, Slager MA, et al. Birth prevalence of congenital heart disease worldwide: a systematic review and meta-analysis. J Am Coll Cardiol 2011;58:2241-2247.
15. García A, Caicedo M, Moreno K, et al. Regional differences in congenital heart disease. Rev Col Cardiología 2017;24:161-168.
16. Sandoval N, Kreutzer C, Jatene M, et al. Pediatric cardiovascular surgery in South America: current status and regional differences. World J Pediatr Congenit Heart Surg 2010;1:321-327.
17. The Society of Thoracic Surgeons Congenital Heart Surgery Data Summary. STS congenital heart surgery data summary all patients [Internet. [Citado 2019 Feb 8. Available at: https://www.sts.org/sites/default/files/documents/Congenital-STSExecSummary_AllPatients_Spring2018.pdf.
18. Vélez J, Sandoval N, Cadavid E, et al. Cooperative study of operatory mortality in the correction of congenital cardiopaties in Colombia. Rev Colomb Cardiol 2005;11:397.
19. Kemper AR, Mahle WT, Martin GR, et al. Strategies for implementing screening for critical congenital heart disease. Pediatrics 2011;128:e1259-e1267.
20. Yang Q, Chen H, Correa A, et al. Racial differences in infant mortality attributable to birth defects in the United States, 19892002. Birth Defects Res A Clin Mol Teratol 2006;76:706-713.
21. Rubio MA, Dennis R, Domínguez MT, et al. Challenges to the improvement of Colombian medical brigades aimed at the diagnosis of congenital heart disease: a qualitative approach. Glob Public Health 2019;14:1193-1203.
22. Mellander M, Sunnegardh J. Failure to diagnose critical heart malformations in newborns before discharge-an increasing problem? Acta Paediatr 2006;95:407-413.
23. Brown KL, Ridout DA, Hoskote A, et al. Delayed diagnosis of congenital heart disease worsens preoperative condition and outcome of surgery in neonates. Heart 2006;92:1298-1302.
24. Peyvandi S, De Santiago V, Chakkarapani E, et al. Association of prenatal diagnosis of critical congenital heart disease with postnatal brain development and the risk of brain injury. JAMA Pediatr 2016;170:e154450.
25. Allan LD. Rationale for and current status of prenatal cardiac intervention. Early Hum Dev 2012;88:287-290.
26. Knowles R, Griebsch I, Dezateux C, et al. Newborn screening for congenital heart defects: a systematic review and cost-effectiveness analysis. Health Technol Assess 2005;9:1-152.
27. Suárez-Ayala DV, Morcillo-Bastidas KL, Vallejo-Mondragón EL, et al. Knowledge and implementation of the neonatal screening for critical congenital heart diseases with a pulse oximetry. Rev Colomb Cardiol 2016;23:553-559.
28. Mahle WT, Newburger JW, Matherne GP, et al. Role of pulse oximetry in examining newborns for congenital heart disease: a scientific statement from the American Heart Association and American Academy of Pediatrics. Circulation 2009;120:447-458.
29. Engel MS, Kochilas LK. Pulse oximetry screening: a review of diagnosing critical congenital heart disease in newborns. Med Devices (Auckl) 2016;9:199-203.
30. Ryan DJ, Mikula EB, Germana S, et al. Screening for critical congenital heart disease in newborns using pulse oximetry: evaluation of nurses knowledge and adherence. Adv Neonatal Care 2014;14:119-128.
31. Pérez-Lescure Picarzo J, Rueda Nuñez F, Centeno Malfaz F, et al. Comments by the Spanish Society for Paediatric Cardiology and Congenital Heart diseases on the recommendations by the Spanish Neonatology Society as regards screening for critical congenital heart diseases in the neonatal period. An Pediatr 2018;89:70-71.
32. Ministerio de Salud y Protección Social-Colciencias. Guía de práctica clínica. Detección de anomalías congénitas en el recién nacido. Minsalud Bogotá, Colombia; 2013 (Guía No. 03).
How to Cite
1.
Enríquez LE, Prada M, Basto-Duarte MC, Muñoz-Pérez Y. The panorama for children with heart disease in Colombia. Colomb. J. Anesthesiol. [Internet]. 2019 Oct. 1 [cited 2024 Apr. 23];47(4):236-42. Available from: https://www.revcolanest.com.co/index.php/rca/article/view/29
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Published
2019-10-01
How to Cite
1.
Enríquez LE, Prada M, Basto-Duarte MC, Muñoz-Pérez Y. The panorama for children with heart disease in Colombia. Colomb. J. Anesthesiol. [Internet]. 2019 Oct. 1 [cited 2024 Apr. 23];47(4):236-42. Available from: https://www.revcolanest.com.co/index.php/rca/article/view/29
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Section
Narrative review
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